Her son was dying, but his rare cancer made it difficult to get the right drug

TL;DR

Mason Henderson, 21, battled a rare brain tumor that spread to his spinal fluid.
His doctors recommended Lynparza, a drug not considered standard for his rare condition, but his insurance refused coverage.
Henderson's mother publicly appealed for access to the drug, leading to a donation from the manufacturer.
Despite receiving the drug for nearly two months, Henderson passed away, with his mother highlighting the time lost fighting healthcare instead of being with her son.
The case illustrates the challenges rare cancer patients encounter with insurance coverage and the need for updated treatment guidelines.

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