Rare disease families don’t trust Trump’s FDA nominee
We call it the “rare disease community,” but there is nothing rare about the number of Americans whose lives are touched by these diseases.
TL;DR
- About 30 million Americans, or 1 in 10, live with a rare disease.
- Collectively, rare disease patients form one of the largest and most vulnerable constituencies in America.
- There are over 7,000 identified rare diseases.
- Cancer affects 18 million Americans, fewer than those with rare diseases.